Chronic cluster headache sufferer here. To sum up, I’ve been: Shot, stabbed, shot a second time, broke 7 bones in various appendages, hit with a baseball bat, hit by a car, multiple teeth issues, and migraine headaches, sprinkled for fun.
Basically, I took steve-o’s motto and ran with it (your body is a ride, ride it until the wheels fall off).
None of this comes close to the lightest cluster headache I’ve had. The sheer panic, the knowledge of what’s about to happen, the inescapable amount of pain I know is coming… Fuck CH.
Is there a connection between your lifestyle and the CH? Did one of these cause the other, in whichever sequence?
As far as lifestyle, no, there’s no connection. There are several common triggers of headaches, and trust me, I avoid any and all of them.
What do you do to get put through all that?
I just played a lot of sports, some of them extreme (downhill biking). Also, I was born and raised in a truly poor region. And I was just very dumb and tough. And tremendously irresponsible
I have, and I tried one time, about 8 years ago. Efficacy wasn’t what I expected, it took me out of my cycle for about a week. But then I was back on the pain train. Not sure how well it would work for me to be in jail (if I get caught with shrooms) + trying to find a way to pace around in a holding cell. Being such a niche disease I kinda have to hope for pharmaceutical companies to develop proper legal treatment “some day”
Top 3:
- Shingles in my eye / face / scalp.
- Appendix ruptured while I was on the toilet.
- Kidney stones (multiple times)
I am picturing this all happening simultaneously
Oh no, shingles in your eye?? How was that?
It was the most painful thing I’ve ever experienced.
Also, I had so many eye doctors appointments. They were worried I’d lose vision in that eye. Luckily I didn’t.
Damn. Glad there wasn’t any vision loss. Yeah I had shingles before too and got treated pretty quick, but it was definitely freaky reading how it could spread to your eyes and cause permanent damage.
The circumcision I had in my mid teens. Well, not the circumcision itself, but the erections I would get in the morning which would rip the stitches out of my cock, bleeding until I masturbated with anesthetic gel to orgasm just to stop the pain.
Jesus a chastity cage would’ve actually probably helped you
Was bending a piece of sheet metal on a 10 ft. bending brake. Stupidly had both my hands in the jaws trying to adjust the workpiece when the jaws partially closed on my hands. Imagine having all your fingers sandwiched between two thick steel plates because that’s basically what happened. It wasn’t really pushing down but just the weight of the jaws alone was enough that I was stuck and couldn’t get my hands out.
It didn’t hurt initially. Just felt like very intense pressure. I started hollering for help. Eventually another guy in the shop saw me and came running over to open the jaws. As soon as he did, I got this sharp, shooting pain in all my fingers. I think I hopped all over the shop, screaming obscenities. Had to just hold ice packs all day to keep the swelling down.
Didn’t lose any of my fingers. Didn’t even break any bones, somehow. Just bruised them really severely. It hurt like a son of a bitch but I was incredibly lucky.
The most intense physical pain I ever felt was waking up after impacted wisdom tooth removal. One side of my face was appr. 3x the size of the other.
The second worse was last week; waking up from anaesthesia after having all 22 remaining teeth removed. It’s slightly better now and I’d put it at 8,5/10.
The worst pain I’ve ever felt was mental though. It started almost three decades ago when my father killed himself when I was a teen. To be honest, I never recovered. I’m a shell of a human being begging for release (death) daily while being too much of a coward to actually do it.
Oh, and after returning to work with 0 teeth, my coworkers now amuse themselves by making me say tongue breakers. I already knew they didn’t like or respect me before all this, but this really drove a dagger into my heart because it was someone I never would have expected it from. I’ve been at this company for 10 years and in this team for 5 and I’m fighting a daily urge to follow in my father’s footsteps.
He really had the right idea. I was pissed at him back then but I have more understanding and respect for his decision every single day.
That’s fucking awful. I genuinely hope you find yourself surrounded with people who love and respect you. I know life can be utter shit, but I’m glad you’re still here.
Perhaps you can get a gofundme for dentures or implants in the future? It’d improve your quality of life and is worth pursuing if you feel like it’s something you have energy for.
Kidney stones. I’ve had the tips of two fingers on my left hand chopped off, and even that didn’t come close to the feeling of a kidney stone rattling down the pipework.
I have Medullary sponge kidney, which in short makes my kidneys a stone factory. It’s a love/hate relationship at this point. On the plus side, I’ve found drinking at least 2 liters of lemonade every day has done wonders to stop my kidneys from feeling like they’re trying to kill me all the time.
Reminds me of a person in Woodwork class who partially cut into their finger with the table saw
I also forgot one day to let the table saw get to full speed and was lucky I didn’t get wood launched at me because the teacher noticed and stopped me from using the saw
I absolutely hated myself for forgetting that basic step because I had used the table saw perfectly fine before
How did you get your fingers chopped off??
By sticking them where they didn’t belong… kind of hard to explain but I was working on a friend’s lawn mower and lost my balance, I tried to push against the mower to hold myself up but my hand slipped, kind of bounced off the ground and the mower blade managed to catch them.
It didn’t really hurt but I was more mad at myself for it happening. I brought the fingertips to the hospital but they were kinda smooshed, and they had to take a bit more bone out of my fingers so that they’d have enough skin to close it up.
Jeez dude I hope your hand is still functional ok
Oh ya, it’s fine… It took a while to get used to having slightly shorter fingers, and it feels weird as hell when you bump things with them without the normal fingertip padding (Now it’s just skin and bone hitting things) but I’m used to it.
Losing people I loved.
Spinal Stenosis. Woke up one day feeling like my back was not only broken, but that I could feel the broken ends grinding against each other.
Toe-to-heel second-degree burns on both feet.
I was 10, and stood up in sand that had been heated by a portable barbecue. The irony is, one of the adults had moved the grill so nobody would step in the coals. It had sunk its little wire legs and had been sitting directly on the sand for a couple of hours.
I stood up, screamed and ran for the ocean. About halfway there, the blisters puffed up and I had to crawl until someone figured out what was happening and hauled me into the water.
- Full bowel blockage
- Ruptured appendix
With number 1, by the time I got to the hospital my shirt was wringing wet with sweat, vomit, tears, and blood. I took it off and told the ambulance driver to just chuck it in the bin lol
- I walked around with a ruptured appendix for weeks without knowing it. In my case, the pain was very minimal (not normal)
- there was so much raw sewage in my abdomen, they decided to gut me from my pelvis to my sternum, take everything out, and powerwash me
- there was a problem with the hospital pharmacy. I woke up in the ICU with zero pain meds and my nurse screaming murder at the pharmacy tech over the phone. “For the love of god he’s up, I need that morphine RIGHT FUCKING NOW”
- don’t know how long it took, but that was pure hell.
- then I got full bowel blockage, multiple times, throwing up and all, with my stomach cut in two trying to heal. Surprisingly the blockage was almost as painful as the unmedicated seppoku I experienced.
Take my upvote for bowel pain being horrific.
Another data point. I also literally broke my back from a fall on the ice. If bowel pain was a 10, I’d put breaking my back at about a 6.
I’m sorry for what you went through, but the mental image of being emptied and power washed is so goddamn funny.
It’s that type of thing that reminds me, oh yeah, we’re basically just machines made of cells
Omg. Bowel pain is the most excruciating type of pain I’ve felt, it’s about as strong as breaking a bone. I’m sorry you been through that!
I’ve never had that, but I have IBS-C and can see exactly how the pain could get that bad. Please tell me they corrected whatever caused it.
Childbirth, my hand was killing me.
Physical pain? Migraine.
I have had kidney stone, childbirth, and broken bones, also once a torn Achilles tendon, all hurt bad, none were as bad as a bad migraine. That is the worst pain I’ve survived. So bad I got hallucinations, crying and puking up anything even a bare sip of water, nothing but pain exists. Migraine is by far the worst physical pain I have felt.
I’ve tried to explain the pain to my partner. She doesn’t understand that pain that intense makes you nausea. I also can’t remember simple things like what month it is, my dogs name, her name, like it’s crazy because your in so much pain. Luckily that have been significantly less frequent since I’ve moved to a different area of the country and I’ve gotten better at preventing them by catching them early.
A pain so great that your fingers stop working and your limbs go numb and everything in your body triggers a throb but you can’t stop crying because it hurts too bad.
Uuuuuuugggggghhhhhh. I’m really happy that you’re able to have them significantly less frequently. That’s a huge boon. Hopefully you can be migraine free moving forward!
Mine got less intense after menopause and the worst ones were when I was on birth control pills, though I didn’t know that until I stopped taking them. I thought menopause might end them (as mine were primarily hormonal), it didn’t but menopause plus continuous daily low dose MHT has come close, but less intense has been interesting - before I didn’t understand when the doctor would ask how bad is the pain, I would say Migraine, like what is the question? There is no scale, it is a migraine. But post menopause they do vary.
I learned that one of the things a migraine does is fuck with serotonin receptors so you experience the pain without any accompanying euphoria, that is part of why it hits different from other pain but the way I’ve described it to people is imagine the worst hangover you’ve had then multiply the headache part of it by about 10x.
I’m only glad that my migraines are very mild: scintillating scotoma to warn me the pain is coming and a tylenol500 and Advil every 2 hours with a good hit of caffeine will tamp that down. Soon as the vision is back I’m almost back to work.
I was once running along a wharf and slipped while landing a jump. Stuck the landing briefly, but then my feet went up and I went down. I lay for a moment mentally checking feeling in the lower extremities and dreading the point when I had to move and run to catch my boat, but I did all that without much issue.
It’s been generally ignored for 30 years, so it’s hardened up nicely between the sacrum and ilium and generally abused the rest of the back with the gait differences. That’s why when I super strained it one morning by merely bending forward, I was the only one in the exam room who was surprised it was gonna do that.
It’s the only time I’ve had morphine (baby morphine 2mg) and it didn’t really do much that was positive – too weak to dull the pain and already hitting me with gut issues. Riding out recovery on the lesser Tylenol/Advil stack was a challenge but I couldn’t take the gut side-effects from the opioids.
Waiting on a programme to strengthen that up has been fun since the hillbillies made the doctor’s quit during COVID, but I’m in a stable state and obviously here to post snark and spelling corrections; so we’re good!
I heard wild stories from paramedic about people with chronic pain.
It is not uncommon to get calls from relatives like: " Our grandma fell, broke leg, and didn’t want to bother you. She is on other side of city and we can’t get to her."
And it turns out that it is open fracture but because she is in pain all the time, she didn’t think it is big deal.
Gout in my knee. Gout anywhere has been bad. The knee was the worst.
No gout attacks in years though, keeping it under control.
I had it on the ball of my foot. Like being stabbed with a thousand lava hot needles.
The first gout attack I had was the worst. I had been limping for two weeks thinking it would just go away, but it got steadily worse until it became unbearable and I went to the doctor. The diagnosis was almost instantaneous. She looked at my foot and went “Yep, gout”. It got worse for another couple of days until it slowly started ebbing away. I was basically a cripple for at least two weeks though.
I have it better under control now, but it still plays up sometimes. Gout sucks, but also there are worse things I suppose.
Doc thought I had gout. Try some drugs and get an x-ray. Not gout, the X-ray shows, just arthritis from walking on my feet in combat boots so much.
Repeat that every time I move and go to the doc to get more of the painkillers I need when it gets really bad.
On the bright side, it’s not gout. ;-)
loss
l | lI ll | l_
