Chronic cluster headache sufferer here.
To sum up, I’ve been:
Shot, stabbed, shot a second time, broke 7 bones in various appendages, hit with a baseball bat, hit by a car, multiple teeth issues, and migraine headaches, sprinkled for fun.
Basically, I took steve-o’s motto and ran with it (your body is a ride, ride it until the wheels fall off).
None of this comes close to the lightest cluster headache I’ve had. The sheer panic, the knowledge of what’s about to happen, the inescapable amount of pain I know is coming… Fuck CH.
I just played a lot of sports, some of them extreme (downhill biking). Also, I was born and raised in a truly poor region. And I was just very dumb and tough. And tremendously irresponsible
I have, and I tried one time, about 8 years ago. Efficacy wasn’t what I expected, it took me out of my cycle for about a week. But then I was back on the pain train. Not sure how well it would work for me to be in jail (if I get caught with shrooms) + trying to find a way to pace around in a holding cell.
Being such a niche disease I kinda have to hope for pharmaceutical companies to develop proper legal treatment “some day”
Chronic cluster headache sufferer here. To sum up, I’ve been: Shot, stabbed, shot a second time, broke 7 bones in various appendages, hit with a baseball bat, hit by a car, multiple teeth issues, and migraine headaches, sprinkled for fun.
Basically, I took steve-o’s motto and ran with it (your body is a ride, ride it until the wheels fall off).
None of this comes close to the lightest cluster headache I’ve had. The sheer panic, the knowledge of what’s about to happen, the inescapable amount of pain I know is coming… Fuck CH.
Is there a connection between your lifestyle and the CH? Did one of these cause the other, in whichever sequence?
As far as lifestyle, no, there’s no connection. There are several common triggers of headaches, and trust me, I avoid any and all of them.
What do you do to get put through all that?
I just played a lot of sports, some of them extreme (downhill biking). Also, I was born and raised in a truly poor region. And I was just very dumb and tough. And tremendously irresponsible
Have you ever looked into psilocybin?
https://blog.petrieflom.law.harvard.edu/2022/04/18/small-doses-of-psychedelics-for-cluster-headaches/
https://americanmigrainefoundation.org/resource-library/can-psilocybin-treat-cluster-headache/
I have, and I tried one time, about 8 years ago. Efficacy wasn’t what I expected, it took me out of my cycle for about a week. But then I was back on the pain train. Not sure how well it would work for me to be in jail (if I get caught with shrooms) + trying to find a way to pace around in a holding cell. Being such a niche disease I kinda have to hope for pharmaceutical companies to develop proper legal treatment “some day”