A friend of mine was feeling ill, but didn’t go to the hospital because he couldn’t afford it. Once the leukemia started advancing though he only lasted a week.

My husband was diagnosed with ulcerative colitis in his early 40s. There was a medication that kept his symptoms more or less in control.

Then he lost his job. The meds ran out and it turns out they cost thousands of dollars without his work insurance plan. This was just before Obamacare, and there was no way we could afford unsubsidized insurance for him on my salary.

His colitis got exponentially worse, and was treated only spotadically when I could scrape together a few hundred dollars for the doctor visit, where he might be able to get enough free samples of the med or a round of steroids to reduce the gut inflammation.

One night as we were lying in bed winding down to sleep, I heard him drop his magazine on the floor and start what I now know was agonal breathing. I called 911 and did my best with CPR, but his heart had stopped and in all likelihood he was dead before the paramedics arrived. He was 53 years old.

I found out from his death certificate that he had severe ischemic heart disease. It was undiagnosed because he hadn’t had regular medical care for years because of the vicious circle of unmedicated symptoms/inability to work/no insurance.

That’s my horror story. There’s also my 4+year quest to be diagnosed with MS, being told by multiple doctors that if I lost weight I wouldn’t be so fatigued I could barely move, or have vertigo, or fall down for no reason, or whatever symptom I had at the time. But hey, at least that story eventually ended with diagnosis and treatment… as long as I have my job and insurance, anyway.

I’m intersex and have both male and female anatomy. US healthcare “insurance” isn’t coded for people like me. It assumes a sex binary when the facts of reality show otherwise.

Back at my old job, I had full premium health insurance. However, they kept denying each and every claim, denying literally everything. They unofficially recognized my intersex condition and used it against me.

Whenever I filed a claim as female, they’d deny it and claim I was male and thus the claim was incorrectly filled out. When I filed as male, they’d pull the exact same stunt now claiming I’m female and thus the claim was incorrectly filled out. Whatever the claim, large or small, it was always the wrong sex on the paperwork.

It was a "heads I win, tails you lose" situation. I have a better job with the government and with a different insurance company, but they too are starting to pull the same stunt. I hate this country for allowing such corruption to thrive.

I used to live in China, where socialized medicine was in theory available for everyone, but in practice most everyone who had a decent job had private insurance from their employer not unlike in the US, which was my situation. It was…fine, but I was a healthy young adult and didn’t have much going on medically. I’ve heard some horror stories from others about the degree of care they received, and had one experience where my doctor simply attributed my migraines to my “unhealthy American lifestyle”, but I never had to worry about coverage.

When I moved back home to Massachusetts a few years later, I didn’t have a job lined up right away, but I did gain immediate coverage through MassHealth (the system the Affordable Care Act was based upon) and it was very cheap. I didn’t have to pay for coverage, but did have a couple copays here and there which weren’t anything crazy.

I started up one job, was laid off after just a couple months when the pandemic happened, and MassHealth was still there to give me some peace of mind. It’s not a perfect system, but it beats running the risk of suffering a health episode that leaves you financially destitute for years and years. I don’t know how well I would have managed elsewhere.

I eventually landed a more stable-long term career and get employer-provided insurance through Tufts. And it’s okay, but I recently had to fight a months-long prolonged battle to get a prior authorization approved for a med I had been taking for years that they just decided out of the blue I didn’t need to take anymore. And it took a lot of back and forth from my doctor to really stress that I needed to stay on this med before they eventually caved and gave me a 1-year approval, but now I’m worried I’ll have to go through this whole song and dance again when that time elapses in a few more months.

I think it’s just a bit ridiculous that the insurance company can simply decide they know my health situation better than myself or my doctor who I’ve been seeing for years now, and out of the blue make life-changing decisions without even having spoken to me or my doctor first.

My childhood friend needed an operation, her family made a commercial for the local TV station trying to raise the money, but she died before they could get enough.

Canadian here. Had an accident and took a ten minute ambulance ride in Minnesota. $1400.

My spouse had their lung collapse. Insurance denied it because we didn’t get advance approval for their lung to collapse.

European visiting the US, so it’s going to be pretty mild.

This was early January, 2021, so I needed a negative covid test before I could start the one month of work I had planned (my reason for being there).

Me: “Noted. I see there’s a clinic across the street from my hotel, I can have it done tomorrow morning.”
Shoreside rep: "Sorry, can’t do that here. It has to be this specific clinic with which we have an agreement.
Me: “How about my travel insurance, won’t they cover it anywhere?”
Rep: “We don’t know that until billing, and then you’d have to expense the copay, which management doesn’t like”

That’s when I learned wtf “copay” is. I had loads to do the day after, but I spent most of the day in a car, back and forth, so that I could visit this one specific clinic for a test that took five minutes.

And if Houston city planners weren’t bribed by Big Concrete and Big Car Dealership, I’m sure the ride would have been significantly shorter as well. As a sidenote, I find it pervertedly fascinating that Houston is a city that somehow manages to be located surprisingly far from Houston itself.

Deny. Defend. Depose.

My wife has a rare disease. Requires expensive drugs monthly. We hit our max out of pocket early every year.

Bye money. forever. until I die.

Sometimes you don’t need anything crazy to describe how shitty our healthcare system is.

Blue Cross denied my claim for coverage of therapy ($125/week) because the address is clearly not a business address. Yes, that’s right, my therapist operates from her home, which is a horse farm. So does this mean BC doesn’t cover any home offices? Or is it just ones that have “ranch” in the address?

We’ll see! I’ve filed a grievance challenging the denial. I’m looking at around $6000 for the year if they persist.

I transferred to a new college and learned the first week of class that they required a few vaccinations I was missing. No problem, the on campus health center can provide them. I confirm with them that they accept my insurance, so I go get the shots.

A few months later, I get a bill in the mail for over $3000. Apparently the health center wasn’t in-network, so I have no idea what they meant by “we accept your insurance.” I layer learned that if I had driven 10 minutes west across the state border, there was an in-network office where those two vaccinations would’ve been completely covered.

I still haven’t paid a penny towards that bill, fuck them. I get daily phone calls from an unknown number, it’s probably collections, but I don’t know for sure since I never answer it. This was years ago and my credit score never took a hit. I’d rather die than reward these parasites with my money.

I’m pretty sure I have a tumor growing on my hip too. I’d get it checked, but between student loans, insane cost of living, and rising costs of literally everything else, I can’t afford to right now. I’m a childless engineer with “great” health insurance and a roommate, so I’m relatively well off. I have no idea why shit hasn’t boiled over yet. Makes me want to depose some CEOs too.

I work in healthcare, and the response from the workers in my hospital to the UHC CEO assassination has been… pretty much the same as the response here on Lemmy!

Couple morale-high-horse folks pearl clutching about no one deserves to die or some shit; but 99% of us are on team Luigi.

We fucking hate parts of this industry, with a strong emphasis on insurance bullshit.

My two cents from the inside.

I make over $150,000 a year and I live pay check to pay check because my son has autism level 2, speech delays, and other motor skills deficits. He has some sort of therapy every weekday. He’s 13, so we’ve been doing this for 11 years now. And every year it is a fight to get things paid for.

This year my company switched insurance providers and the speech therapist that he has gone to for 6 years was suddenly out of network. So, I either pull him out and start over somewhere new or do what I did and pay $200 out of pocket every week. Which does not go towards our $13,000 deductible. Next year we’re switching again so I’m sure there will be something they won’t cover.

I make too much money to get anything from the state, which seeing how I live in Texas, I’m not really sure I’d want their services. Come hell or high water we getting out of this state and if possible this country next year.

I could not walk for more than 5 minutes without excruciating pain. I finally asked to be taken to the hospital after a back spasm that had me bash my face after a fall.

Went to the hospital. Was diagnosed with “mild scoliosis” and “anxiety” and sent home with stronger than average Tylenol. Was bedridden for nearly 2 months. Lost my job. Got other appointments for GP. Looked and said I needed a specialist. I could not afford a specialist, as I was now out of money. They shrugged and wished me luck.

I was forced to stay like this for nearly 2 full years.

When I was on the verge of killing myself, someone offered to pay for a chiropractor. I didn’t care. I had nothing to lose.

Anyhow, long story short, guy found that my spine had been forcefully lodged into my pelvis and stuck there. Dude had me healed in week.

This is NOT an endorsement for chiropractors— this is a testament to the failure of the healthcare system. I could not see anyone, so my desperation led me there.

I still have back issues. But I can walk again and be touched without pain.